BY ORI CAPPELLA
Photo Credit: Paige Bettencourt
In a world characterized by diversity and individuality, the relationship between disability and faith stands out as a poignant testament to the potential of human spirit and resilience. This connection is particularly profound when viewed through the lens of personal experience, such as that of individuals like me who have traversed the intricate path of disability, faith, and personal transformation.
My journey with high-functioning autism began at a tender age, as I was diagnosed at just 18 months (about 1 and a half years) old through Boston Children's Hospital. It's important to note that my diagnosis, while an integral part of my life, does not define my abilities or limit my potential. It is in this context that using person-first language, such as "I have autism" rather than "I am autistic," is significant. This person-first approach emphasizes that my diagnosis is just one aspect of who I am, allowing me to express the full range of my capabilities and aspirations.
This journey has not been without its challenges and moments of doubt. It's during these times that my favorite verse, Psalm 46:5, has provided me with immeasurable strength and inspiration. The verse reads, "God is within her; she will not fall. God will help her at break of day." For me, this verse encapsulates the profound connection between faith and disability. It reminds me that, regardless of the obstacles I face, I am never alone in my struggles. The divine presence within me provides the inner fortitude to withstand the storms of life, and it is this unwavering support that has allowed me to overcome adversity and find my way back to faith.
This diagnosis fundamentally altered the trajectory of my life, placing my family on a path where healthcare and skill development became paramount. The pursuit of independence necessitated dedicated effort, which sometimes led me away from the embrace of faith and left me feeling like an outcast when I entered the doors of a church as a child. It was a time of uncertainty, marked by the isolation that often accompanies the experience of being different.
However, life has a way of leading us down unexpected paths, and my personal journey is no exception. In March of 2022, I found my way back to Christ, guided by a newfound sense of purpose and the desire to rediscover the faith that had once seemed distant. This return to faith was not without its trials; it was a journey marked by depression, anxiety, fear, and isolation, and yet, it was precisely in those dark moments that the profound connection between disability and faith became evident.
One of the most compelling aspects of this connection is the resilience that arises from the depths of personal challenges. My journey with autism and the struggles I faced with mental health issues instilled in me an unwavering determination to overcome adversity. It was faith that provided the beacon of hope and strength to navigate these turbulent waters, granting me the courage to confront obstacles head-on.
Faith, in my life, has become a source of healing and restoration, a means by which to find solace amidst the storm. It has also rekindled my sense of community and support, helping me connect with others who share in the joys and tribulations of living with a disability. Through faith-based gatherings, I have discovered a shared sense of humanity that transcends any physical or cognitive differences, offering a sense of belonging I longed for during my earlier experiences.
My personal journey has also forced me to grapple with complex ethical questions surrounding divine purpose and suffering. The intersection of disability and faith encourages deep introspection and growth, as I consider the role of faith in finding meaning and purpose in the midst of challenges.
As I look back on my life, I can see the profound influence of faith in shaping my personal transformation and enabling me to navigate the unique challenges of living with high-functioning autism. The connection between disability and faith has not only been a beacon of hope but also a catalyst for change, leading me to rediscover my faith and reaffirm my sense of belonging within the embrace of a loving and inclusive faith community.
Throughout my educational journey, I navigated the complexities of disability and faith, from the initial support of an Individualized Education Program (IEP) in public school to my transition to a 504 plan in college. In a world where physical and cognitive diversity is a fundamental aspect of human experience, it is imperative that we recognize and celebrate the connection between disability and faith, particularly through personal stories like mine. By embracing this connection, we can create a more inclusive and compassionate world, one where the uniqueness and inherent worth of every individual, regardless of their abilities, is acknowledged and celebrated, always remembering the significance of using person-first language to emphasize that our diagnoses do not define us but rather enhance the tapestry of our lives. And throughout it all, the enduring words of Psalm 46:5 continue to inspire and remind me that with faith, we can overcome all challenges and find our way back to the light, no matter how dark the night may be.
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